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DOCUMENT GENERAL INFORMATION

TITLE
Policy-oriented and harmonising research activities in the field of primary immunodeficiencydiseases (PIDs)
  euro_policy_pid_en.pdf (3.61 MB)
Document ID LIB157
Document type EC RTD Programmes projects / results
Issue date 14/06/2005
Document reference EURO-POLICY-PID
Original language of the document English
Document produced by EC-Research and Innovation DG organisation visiting card
Document requested by EC-Research and Innovation DG organisation visiting card
Scientific domains
Policy domains
  • Health

DOCUMENT TEXT

Short description  Primary Immunodeficiency Diseases (PIDs) are rare diseases which can be
studied most effectively using transnational co-operation, which would enable
the maximum number of cases to be examined. Although rare, they affect around 60 000
patients across Europe. Within that total, there are more than 100 different forms of PIDs,
with a further 100 expected to be identified over the next ten years. This diversity
poses a considerable challenge to researchers and clinicians. In addition,
the diseases are difficult to diagnose, frequently require complex treatment
regimens, and the genetic basis of many of them is not known.
EURO-POLICY-PID will promote the international collaboration needed to sustain and develop Europe’s
world-leading position in research on primary immunodeficiency diseases.
Abstract (focusing on the key recommendations)  EURO-POLICY-PID will promote the international
collaboration needed to sustain and develop Europe’s
world-leading position in research on primary
immunodeficiency diseases
The project will:
Increase our understanding of the causes of PIDs and
identify novel mutations and new disease genes that are
implicated in PIDs
Provide improved knowledge on the prevalence of PIDs
throughout Europe
E ...

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